Posts Filed Under Ramblings

Jogging My Memory

posted by Momo Fali on March 11, 2009

My best friend, Bean, saves everything. It has been particularly beneficial when I want to remember something that happened years ago and need help jogging my memory. She will inevitably pull up her organized computer files and find whatever I’m looking for, then will resend me e-mails that I sent her in 2004 just so I can know which work-out tape I was using when it hurt so much that I called the instructor some very colorful names. Kathy Smith, you mock me with all that talking…and breathing.

Yesterday, Bean sent me this from August, 2002. My son was three months old and obviously having difficulty sleeping. I had sent her this e-mail, probably to vent as I so often did.

I don’t know what to do with him. He’s been aspirating on spit-up the past couple of nights, so last night I put him in his car seat to sleep, but he still did it. He doesn’t breathe very well in his car seat either. I can make sure he’s on his side so he won’t choke on it, but I can’t stop it from going up his nose, and understandably, when that happens he freaks out. He tenses up and won’t take a breath. I’ve heard him do it the past few nights and was able to get to him before he bradied (bradycardia…where his heart rate drops dangerously low), but he’s certainly not resting well and neither am I.

What amazes me, is that I had forgotten all about this period of time, but reading about it brought it all back. I now vividly remember his tiny body stiffening and the gulping sound he would make as he struggled to get air down his throat because his nose was filled with fluid. My, maybe, six pound, three month old probably felt like he was drowning.

I figure that I forgot these episodes because there have been so many other tough experiences with my son and it’s much easier and makes me much happier to remember the fun stuff. Which is mostly what I write about here.

But, that doesn’t mean I will ever forget the first time I stroked my son’s head, or the first time he was wheeled away from us for heart surgery, or when a nurse stood over him when he stopped breathing in the recovery room after a surgery three years ago and yelled in my boy’s face, “Don’t quit on me!”

Some things you can’t forget even if you want to.

But, I much prefer to think about the time when we were in Target and he ran away from me and yelled for me to “come chase him and pinch his butt”, or the time when he asked me if he could take a quarter to school for “Q” day and put it in the “little pocket on the front of his underwear”, or when he saw a woman in a red sweat-suit and called her “Santa’s brother”. I could never decide if it was worse to get insulted by a five-year old, get called a man, or be told you resemble a jolly old elf.

He once told a very much alive, elderly woman that she had “died” because she was old. He mentioned to our cable repairman that he looked like Santa, because of his “big round belly”. And, it’s a toss-up as to whether my personal favorite is the time when he told a masculine woman that she looked like “kind of a girl”, or when we were at the doctor’s office and he mistook two Muslim women’s head scarves for bandannas and called them both “pirates”.

Some things you can’t forget and never, ever want to.

These things that mortified me at the time, now make me laugh and remind me that despite everything this kid has gone through, he still has an amazing spirit and this gift of wit and sarcasm like none I’ve ever seen.

Which is why I’m glad Bean sent me that e-mail. To remind me not to sweat the small stuff, because my son has come so far. So very far. And, through it all he has chosen to make us laugh instead of complain.

However, none of this can make me stop calling Kathy Smith names.

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Tatiana

posted by Momo Fali on March 4, 2009

If you are not a viewer of American Idol, let me introduce to you Tatiana. Some of us are hoping Tatiana gets sent home soon…

…and some of us aren’t. Here is my son’s take on it. Also, you get a look at his OCD flavor of the month. Not long ago, he swiped his forehead a thousand times a day, then he moved on to scratching his arms and legs incessantly, then to pulling up his pants over, and over, and over. See if you can guess what he does obsessively now.

Bessie

posted by Momo Fali on March 2, 2009

When I turned 16 years old, my mom bought me a used car from one of her co-workers. After she brought it home, I gleefully jumped inside to go for my first solo ride.

I went exactly two blocks before the power steering went out as I was turning a corner. All you modern youngsters may not know what I’m talking about, but when the power steering went out on a car made in the mid-seventies, you were no longer trying to drive an automobile. I would compare it to a cruise ship…or maybe a planet. A planet whose orbit you are trying to control with only the power of your biceps.

I got my second car a couple of weeks later (yet, for all intents and purposes it was really my first…two blocks does not a first car make). It was a hand-me-down from my pregnant sister, who could no longer climb over the center console to get to the driver’s seat. Why didn’t she just open the driver-side door? Because it didn’t open. At all.

It was a 1977 Oldsmobile Cutlass, and that door wasn’t the only thing that malfunctioned. One time, I went to make a left-hand turn and the entire turn signal stick broke off and fell to the floor. I couldn’t drive over 55 mph without the tape cassette ejecting and flying into the back seat, and once when I was unlocking the only working door, the entire lock mechanism came out with my key.

My mom often tells stories about her first car. She had three young kids when some people from her work felt sorry for her and gave her a very old, very used jalopy. There were no seats in the back so my sisters had to stand, which had an added hazard because there was also a hole in the floor. And, and those three young kids could often be seen giving the car a push to get it started.

Speaking of pushing…my cousin’s first car had a broken gas gauge. Since she was old enough to drive, and I wasn’t, guess who got to push it every time it ran out of gas?

I went through three other used cars before, in 1997, I bought my first new car and have been driving it ever since. It’s the only car my kids have ever known me to drive and they have affectionately named her, “Bessie”.

Coming home from school the other day, Bessie was making some strange sounds when I looked in the rear-view mirror and said to the kids, “Bessie is getting old. I don’t know how much longer she’ll be running.”

My 10 year old daughter matter-of-factly said, “Well, when we get a new car we still have to keep this one.”

I laughed. “No. We won’t be keeping this one. Why would we do that?”

“I don’t know. Just so we could look at it, I guess. Can’t we keep it in the driveway?”

I replied, “No. We can’t keep it in the driveway. We don’t have room in the driveway to keep cars just so we can look at them.”

She said, “Aw! That really stinks!” She was genuinely upset about it.

But, what she doesn’t know is that I’m planning to drive Bessie for five-and-a-half more years…so it will be in perfect condition to hand over to my daughter as her very first car.

Hear Me, Touch Me

posted by Momo Fali on February 27, 2009

My six year old son has always dealt with sensory issues. He was in occupational therapy for years because of problems eating foods with certain textures and for his mental battle with being touched. As far as touch goes, he’s now on the opposite end of the sensory spectrum and can’t seem to keep his hands off anyone showing bare skin.

But there is another issue that the therapists don’t know how to deal with. He gags. A lot.

Now I’m not talking about gagging when he doesn’t like how mashed potatoes feel in his mouth. We’ve moved past that. I’m talking about gagging when a bike helmet strap rests under his chin, or when he’s wearing a turtleneck, or when he’s in a wedding and is supposed to wear a bow-tie. One time he was a ring bearer and wouldn’t wear the tuxedo tie, jacket OR vest. We couldn’t even button up his shirt. He came down the aisle resembling Eric Estrada, minus the chest hair.

When he has a cold it’s even worse, as he proved the other day during his quarterly hearing test.

At the ENT’s office, the audiologist had put my son in a sound-proof room and placed large headphones on his ears. These were the same headphones he’s worn many times before…but, the other times he didn’t have a cold.

Never mind that it was Fat Tuesday and my kid arrived at the doctor’s office wearing FIVE beaded necklaces around his neck. He likes to keep me guessing about what will really bother him, so I didn’t see it coming when the pressure from the headphones made him start gagging.

I could see him through a window and I quickly ran into the room and took the headphones off, as he began pulling on the collars of his shirt and undershirt, trying hard to get them away from his neck. I started unbuttoning his oxford to remove it as I explained to the audiologist what was going on.

We then tried putting the headphones on and letting the wires run down his back, thinking it could’ve been those wires touching his chin or neck that bothered him. No go. He gagged again and pulled on his undershirt collar, so I took that off too.

We finally figured out that he was okay doing a test with ear buds instead of the big headphones, but I had to hold all the wires behind his head so they weren’ t touching him in any way.

And in the middle of the hearing test his other sensory issue…his love of bare skin…reared its ugly head.

There I was with my hands full of wires, staring down at my half-naked kid who couldn’t hear a word I said…as I helplessly watched him rub his own nipples.